If you are involved in patient care or diagnostics within pediatric or adult nephrology or genetics, please participate in our study.
Your response is invaluable to us, and it will only take 15 minutes of your time.
Please click on the following link to access the survey: Castor EDC
This concerns a Europe-wide survey, investigating your experience with the barriers to and accessibility of genetic testing in kidney disease.
Over the past years, genetic testing for patients with suspected hereditary kidney disease has become technically feasible. However, throughout Europe, there are barriers to the accessibility and further implementation of genetic services in (pediatric) nephrology. To improve accessibility and care for these patients, we aim to identify these barriers.
This research project is conducted on behalf of the EU TheRaCil Consortium (WP5; Workplan – TheRaCil), through collaboration with ERA, ESPN and ERKNet.
We need as many people as possible to participate to provide clear insights into barriers and points for improvements in different European countries. It would be greatly appreciated if you could forward this survey to other eligible colleagues.
Please help us by filling out the survey before July 1st!
Thank you for considering, we look forward to your contribution.
Albertien van Eerde, Max Liebau, Jens König, Laurence Heidet, Franz Schaefer, Kerry Leeson, Hannah Mitchison, Sophie Saunier, Femke Buining and Margriet Gosselink